If you were wondering or thought you missed an update, have no fear. Nothing was posted yesterday. I had a lousy day most of yesterday with a headache like nothing I've experienced in as far back as I can recall. So rather than risk loosing control of my tongue (or in this case my finger tips), I opted for a nap, a nice 3-hour nap. Combine that with an Advil-PM enhanced night of sleep, and I'm doing much better today.
Peyton's doing alright. I mean everything short of heart failure seems fine to me. She's doing some bottle feeding, about 10 to 15 ml per feeding; however the doc wants her eating 80 ml, so we're pushing 60 to 70 ml through the NG tube.
We're getting conflicting reports on when she can come home. Could be today, tomorrow, or next week...all depends on who you ask.
Monday, April 20, 2009
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Hope she gets to go home soon! Is there a reasoning behind why she's not eating better on her own or does it just depend on who you ask? Y'all hang in there!
ReplyDeleteAvery had the same issue with feeding.....He still has those issues.....
ReplyDeleteAvery was gavaged most of his feedings because he REFUSED eating from the bottle.....So after fighting with the doctors to take his feeding tube out, (they wanted him to eat WAY TOO MUCH....So his belly would stay full for a long period of time and at every feeding he was still full and didn't want to eat)....They FINALLY did it and let me breast feed him... A few days later he was home....He was not a good eater still, but they felt it was best for him and our family if he came home.......He is almost 11 months and still gets full VERY QUICKLY.....Every baby is different, but they did not let me take Avery home till he could prove to them that he could take ALL feeds by mouth by himself......
One feed he might take 1 oz.....but the next feed he would take like 4 oz.....the next maybe 2 oz....the feed after that 3 oz.....So he was hitting his feeding target and he was gaining weight......but they DID allow him to come home....he just had to go to the doctors ever week to 2 weeks for weight checks.....
Sorry if I confused you!! I could write a book about Avery's and our experience.....
If she's having trouble with doing all of her feeds by mouth then My advice would be to have them get rid of her NG tube and to have her make up her own feeding schedule.....and see how she does.... :0) She could surprise you by being a little piggy :0)
We are still praying for Peyton!!!
God bless!
Alyson
http://wellensfamily.blogspot.com
Our Ramona also struggled with feeding. She actually came home from the hospital with the NG tube and had it for over a year. I don't say that to scare you, but to let you know that there is a wide range of experiences. She is orally fed now, and although she is a picky eater she is consistently in the 50-60% for weight. She's two and a half now. The feeding tube can be stressful, but so can worrying about every ounce your child eats!
ReplyDeleteHere she is at 10 months, looking great with her NG. We never did opt for the G tube: http://ramonamae.com/2007/twenty-pound-bag/
Have they done a swallow study to rule out dysphagia?
Jane, another heart mom.
Hooray for a 3 hour nap! :) We're still praying for the three of you.
ReplyDelete